It’s funny the things you hear through the grapevine. Do you see her out there with no hair and no makeup? Get her a wig! Put her face on! Not that I’ve worn make up or cared in over a decade. I’m very curious about how this hair is going to grow out. Lots of gray from what I can see so far! I’ve never really played with my hair very much — long and straight, mostly put up in a braid. And now that I live in a tropical climate, it might make much more sense to keep it cropped short!
I’m sort of fascinated with how wide open my eyes are lately. It doesn’t hurt! I can look in all directions without pain. I’m not hiding behind hats and glasses and dark rooms. It’s sort of amazing.
I’m still a blazing furnace of hot, despite being down to two steroids three times a day. I can definitely feel when they kick in, and I radiate heat. No fever or anything, so just cool cloths and fans and a nap, which is the only way I can tell that I’m still recovering. I feel so much better!
I’m also still eating everything in sight. Two breakfasts, two lunches … a smoothie for a snack, and tapping my fingers waiting for dinner. Still losing weight at about a half a pound a day, despite eating so much. I think I have a year’s worth of deficit to make up for!
I’m so very grateful how this turned out. I was prepared for months of recovery. They said it was to be expected! I sort of keep waiting for something to go wrong, but honestly, I’m just doing great. No pain, no deficits, every single symptom that I had is GONE. I feel like a have something to say about the whole process, but I’m not quite sure what the forum would be. But imagine a brain tumor patient without the network I had? I would have died. I also felt completely dismissed as a female patient with symptoms that didn’t follow the male playbook.
We are hoping to get Disa over here first, and I can’t wait. Hopeful date is October 17th. It’s very expensive, and I haven’t worked since I passed out at work in February, so financing it all is going to be tricky. I miss my girls so very much.