The first surgery to remove the pineal region tumor was on September 14, 2017. I just completed my one year follow up appointment, and the MRI shows no sign of a tumor. What a relief!
I’ve been having odd symptoms for the entire year, so I was convinced that the tiny bit that Glazier had to leave (the size of your pinky nail) was growing and woe is me. But the MRI looks great. What was left has shriveled up and been reabsorbed, and there is no sign of a tumor at this point. Next follow up in a year. (Cells could still be there and grow, but whatever. Nothing to see there now. Yay!)
I have a few deficits that I am dealing with. My short term memory is very bad, and writing is very difficult. I’m also dealing with severe anemia, most likely because I have never regained my appetite, and continue to slowly lose weight. I obviously had quite a bit to lose, but needing iron transfusions is not fun.
He is send me to a neuropsych guy for an evaluation and strategizing. I’m looking forward to that.
What’s the appropriate gift to give to a surgeon for such a remarkable feat? Wine? Chocolate? Coffee? All of the above, I think.
Now to decide what to do with my life! So exciting.